Sunday, October 17, 2010

Harvest Ball

Early spring, Maddie was asked as one of 25 Seattle Children's hospital patients from our area to be featured at the 25th Anniversary Harvest Ball. The Harvest Ball is an annual event presented by nine Tri-City guilds that support Seattle Children's Hospital. Mom, Maddie and I went down to the ball last night to enjoy a 5-course dinner, auction and dancing in the Tri-Cities. Bryan has been very busy with harvest and opted out (not really his thing so he and boys had a fun night at home together). These photos were taken back in March of the patients and were used to decorate with as well as on the invitations and pamphlets for the event. Photos by Brittney Kluse.Maddie and her heart sister, Teagan, were the cover of the calendar given at the event as well as the the month of February with the cute kissing picture. We missed having the Maxwell's there last night. I would have loved seeing these two together!Many of the patients spoke last evening, giving short stories of their health issues and how Children's has changed their lives. It was touching. We were very proud of Jackson...he did a great job (not pictured in our photo session).
So, to gear Miss Maddie up for this big night, we kept telling her we were going to Cinderella's ball. We often call her our "princess" and she surely lived up to her name last night! She was given her own special dinner of elegant but tasty kid's food. She had manners just like a princess by...
sipping her chocolate milk from a beautiful glass...
to posing by charming boys like our friend Jackson (this is as near as she'd come to him or any young man, I hope she's this way in her teen years with boys!) We enjoyed sitting with Noftles, Andersens, Courtney and Jenks. It's always nice to have familiar faces at an event like this. to having many adore her, especially her Nany. She was pampered! But once the band started, our princess perked right up and wanted to hit the dance floor! Dancing with Nany and Mama, as well as sweet little girls who'd come and take her hands and whisk her away

She came right out of her shell! She loved, loved, loved the live band. More dancing, or shaking her "booty" as she calls it It was an evening fit for a princess and this little girl had a grand time at the ball! It was precious and just watching her brought many smiles, tears and a big sigh in our hearts. Never in our wildest dreams did we imagine she'd be this healthy and living life so fully. It was magical.

Thursday, October 14, 2010

birthday boy...belated

Recently, it was this guy's birthday. To really appreciate Caden and all that he brings to our family, here's to a half-decade of memories and pictures of Mr. Cade. We love you so much Caders and thank you for being YOU! You're a very special little boy who's definitely, one of a kind :) Cade's our fall baby, born September 29th. I was induced with Cade and his labor and delivery was fairly quick. He's our biggest baby and was the chunkiest and the easiest baby of our 3.
Cade is known for his long eye-lashes (which he's even trimmed once) and his beautiful curls as a baby. After his first haircut, those baby curls disappeared. He walked early on at 10 months old and has always been able to keep up with the big boys.
His favorite movie before Spiderman was introduced to him was, believe it or not, Nacho Libre. In fact, he was Nacho for Halloween when he was only two...here he is, doing his best Nacho impersonation. He'd even make the "fart noise" as he dove off the couch. He was an adorable little boy (still is) and he can still make some gross noises.
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When Caden decides to put his mind to something, it's over. He has more will power than anyone I've ever known...like when he wanted his training wheels off, he had just turned 4 and in a few hours, conquered riding his bike like a big boy. And when he was called a "baby" for sucking his thumb at preschool, it was over. That night, he quit, cold-turkey, his thumb sucking habit he'd had since birth. In fact, we have an ultrasound picture of Caden sucking his thumb. When he felt the urge, he'd bite his blankie (which I worried would become a new habit) but this only lasted a couple of nights, accompanied with tears of frustration. It was really amazing and he's one strong little boy. Another time is when he wanted to only wear "underwears" like his big brother and be potty trained, he initiated it himself and pretty much trained himself. I was pregnant and in the midst of my grief of finding out about Maddie's heart and the last thing I wanted to do was work on potty training but Cade forced it and achieved, once again. He's also our little fish...loves to swim and isn't afraid of the water, deep end, going under water, diving board, not scared one bit. It's a little scary to watch sometimes. We don't call him our little super hero for nothin'!
Cade also has his own sense of style. He used to only wear anything red, then only superhero costumes or apparel with the like splashed all over it, then it was only long sleeves, the layered look, and now it's this. A baseball cap, turned backwards on the very back of his cute little noggin. He's a trendsetter!

He's also a very passionate little boy. He cries hard, talks loud, plays hard, loves lots, laughs loud and sleeps hard. Everything he does, he puts 110% forward. It's a wonderful trait and we can't give ourselves credit for any of this, this is just Cade. He definitely has likes and dislikes and negotiating with him is tough. When he's mad, watch out. He's usually on a mission and don't get in his way! He can also be the kindest boy. He's observant and doesn't let much go unnoticed. We're so proud of his determination and I wish I had more of Caden's will-power!




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Here's to our creative, sweet, fun-loving boy! Happy 5th Birthday Caden Larry!!!

Monday, October 4, 2010

Angel Ewan

Heaven is rejoicing as our little heart friend Ewan went home to be with Jesus last night. His broken heart is now perfectly healed. Please continue to lift his beautiful family in your prayers...

Friday, October 1, 2010

Pray for Ewan

This sweet heart baby and his family need your prayers. His mama, Kirsten and I met through our blogs a couple of months ago and have kept in touch since. We believe in the power of prayer and right now, Ewan needs a miracle. You can send this fellow Seattle Children's family well-wishes and thoughts by clicking here.

Sunday, September 26, 2010

Friday's Cardiology Appointment


Bryan, Maddie and I took a quick trip over to Bellevue on Friday for her cardiology check-up. Clinic is now at the brand new, 75,000 sq. ft. Children's Bellevue Clinic, which was so incredibly fancy, clean and state of the art. She's making steady improvements with her appointments and this one had less tears and more self-control on her part. It was good progress for Moom's.

She had the full work-up: EKG, blood pressure, weight/height, sat check, and echo. Dr. Chun was so pleased with the pictures he got from the echo- a clear view of her SVC as well as pulmonary arteries (which is always our concern). They still look like they're staying opened and her sats reflect this at 77%, same as what she came home with post-cath in May. He's very excited about her weight, 13.4 kilos (29 1/2 lbs.) and with the curve she's on regarding her growth chart, she should hit that "magic number" by late spring and be ready for her Fontan surgery. Because she'll have a permanent gortex-tube placed in her heart this surgery, the size is critical. The magic number is 15 kilos or 33 lbs....to put in an 18 mm or 20 mm conduit, which is the goal for the size of conduit in the Extra-Cardiac Fontan Surgery.

The plan is to have a cath in February to determine if she's ready for it as well as a maintenance check before surgery. He said that she'll most likely have the Fontan 1-2 months after the cath, once she's presented to the cardiology team. If things continue to stay the same, we're looking at March or April for her third open-heart surgery at Seattle. She'll just be turning 3.

Upon leaving the appointment, Nurse Barb strapped on another Holter Monitor to our little princess for her pre-Fontan study of her heart's electrophysiology over a 24-hour period. She did really good with it this time and I'll Fed-Ex the leads and monitor back tomorrow. But this was just another reminder that our daughter does indeed have a very serious heart problem... the Holter results will help determine whether pacing wires will be put in during her Fontan surgery. Some kids (many single-ventricles at some point) will need a pacemaker and while the surgeon is already in there, it's a debate whether to just put wires in during the Fontan, just for future's sake. The least amount of times they have to do a sternotomy on patients, the better.

I left with a bittersweet feeling; relieved that she had such a wonderful checkup but the reality of her 3rd surgery really sunk in and my stomach has been in knots. She's closer than further away from her Fontan now and there's no getting out of it. I know I've said that I just want to get it over with but now that it's really creeping up on us, I take it back! It's sad realizing what she'll have to endure with this last operation and my heart breaks just putting her through this. Maddie has done so extremely well with her anatomy that it just doesn't seem right sometimes. We have been so lucky and blessed with her. So we are enjoying each moment...we have lots to look forward to with the holidays coming up and a fun family vacation. We know that God's timing is best and we put our faith and complete trust in Him.

Lots of firsts

I'm a little late on posting our first day of school pictures. Here's Jace on his first day of 1st grade. He has Mrs. Albertson this year and is enjoying it. He's also playing soccer right now and has mom for his coach :) A first for me... We started preschool a week after school began. I'm teaching 12 three, four and five year olds in our basement, two mornings a week. I've worked at preschools before but this is my first year teaching preschool on my own. "Apple Country Preschool" (our name) has had the help of wonderful preschool mom's each time, so that's been awesome. It's really been fun and I think I lucked out with my class :) They're lots of fun and a very bright group. Caden enjoys it but it did take a couple of sessions before he realized that I meant business. Let's just say he "broke in" our STOP chair the first couple of days at preschool. It's rough when your mom's the teacher and you have to share her attention!
This is Cade's 3rd year of preschool so he really is a pro. He was ready for Kindergarten but his birthday fell too late for him to go this fall. I am loving having him in our group, he's a great help and it's rewarding watching him work.

So two mornings a week, this guy and I enjoy a few hours together. Miss Maddie goes to either my mom's house or Bryan's mom's during preschool. She's also had a fun time at Courtney's one morning, playing with Aftyn. It's been great for us all and I've got lots of fun planned this preschool year! I'm loving getting my "teaching fix" again! It's been 7 years since I've had a classroom!

Friday, September 17, 2010

summer fun

Summer feels officially over. The kid's are still asking when we can go swimming and Maddie sneaks into her dresser and grabs her "sweesuits" to have me put on her daily. Too bad fall crept it's way in so quickly, we could still use some summer. These three spent much of their days in suits, playing outside, riding bikes, splashing in pools and just enjoyed breaking in our new home.We only made it to the water park once this summer but the kid's really loved it and we'll need to fit that into our summer time schedule many more days next summer!


Cade & Jace have become pretty good fishermen, thanks to their Uncle Ryan. He's a great sport and asked them to go fishing with him on the ranch a few times this summer. Bryan also took them out on a boat with cousins Nick, Gunnar and Campbelle. Now that was some fishing!
The pond at Uncle Jerry & Aunt Chriss' is one of the highlights of our summer. A great time to visit with friends and let the kid's enjoy rope swinging, paddle boating and just playing in the sand. I had to post this picture of Maddie since she loves to suck her thumb and pick her nose. It's gross and cute at the same time. We're trying to quit the picking part, not quite ready to wean her from her thumb yet...she's going to need it for her Fontan recovery!!!
Cannonball!
Little miss happy...she truly is a cheerful little girl, most of the time. And she's talking so much more! Chatty Maddie :)
Ted and Jean's little pools are another highlight...wading pools that are warm, fun and close by.
We loved having the Maxwell's come visit us one day this summer, we don't get together as much as we'd like. Life is busy for our little families. Here's our three with Trent & Susie's three: Gavin, Bode and Teagan.
These half-heart sisters have a special connection. They are so cute together and seem to know and love one another in a way that most 2 year olds don't have the capacity of doing. Maddie's a lucky girl to have Teagie as one of her best buds and I look forward to watching these two grow up. Their hearts sure aren't slowing them down!
And we did make it to the Grant County Fair (on the hottest day) but I only took 1 picture- Jace holding this cute little bunny. He looks a little possessed, but was pretty excited to be holding a real rabbit! Kylie Rose, Aunt Jessica and Nany came along with us too and luckily the rides weren't open. I hate fair rides. The boys weren't too happy about it...oh well, there's always next year to look forward to!

Good bye summer!