Cardiology Appt.

Today Maddie and I drove over to Seattle for her cardiology appointment with Dr. Chun. After a chest x-ray, heel poke for labs, an EKG and visit with Dr. Chun, the consensus for her appointment was GREAT! After a little OD on Captropril last week (yes, the pharmacy had changed its recipe and was mixing it at a 5x higher suspension rate) I was a bit worried about my girl. As her mother, I felt HORRIBLE for giving her the wrong dosage but was totally unaware of it until the bottle ran out quicker than expected. I beat up on myself pretty hard and was so pissed about the pharmacy's part in this mistake!!! I had not been "prepped" by them prior to giving her the medicine and had no idea how they compounded it! Note to self: always ask them to give you a rundown on the perscription before giving it! Anyways, to put it simply, Maddie tolerates a lot. The only "signs" she had was little interest in eating (which is her norm more and more these days), funny looking poop, and she was sleepier than usual. Duh...her blood vessels were extremely dilated and lazy from too much Captropril! So she's now off of the Captropril, she's satting at 85% and seems to be feeling much more like herself. Her labs came back a bit high in potassium but Chun wasn't too concerned about those numbers. Everything else checked out great...she weighed in at 14 lbs 3 oz and is 25.7 inches in length. We also aren't due back for another cardiology appointment until the end of November! AHHH!?! I don't think I can make it that long but this is awesome news Maddie doesn't have to be seen until then. Dr. Chun has confidence in how she looks and overall, how she's doing. Even though I'm nervous not having a monthly checkup, it is a big sigh of relief and reassures that everything is going great in that little heart of hers!

Maddie with Dr. Chun, he's the best to visit with...he always answers all of my questions and I have learned so much through his explanations, he's a great teacher and is the nicest doctor!

The highlight of the day was going to see Teagan and Susie. Teags has had a rough couple of weeks after her Glenn surgery. Teagan is truly her "heart sister". Like I've said before, their hearts complete each other to make 1 healthy one. Although these two 1/2 hearts are pretty tough and hold their own quite well!!! Teagan is just a doll, and it was so nice to see them again. We check on her daily through their blog and Susie and I visit on the phone just about as much. We had a fun time as "visitors" on the floor this time. Different being on the other side, even had to get a visitors pass! We're looking forward to when they are home and rested so we can get together for a nice day with our "bestest" (as Jace and Cade would say) heart friends!!!



We couldn't help but stop by the CICU on our way out. We delivered some freshly picked apples (after many offers and promises made from our prior stays) and we got to see Joanna, one of our favorite nurses! We hadn't seen her since March so she was so excited to see Maddie "all grown up" now! We also picked up the empty "Maddie blankets" basket so we can make up another round of blankets and burp cloths for the ICU. Dr. Baden strolled by just in time and was able to take the box of apples...he's given us such a bad time about being farmers that I wanted him to have the "fruits of our labor" (literally)!!! I think he's now impressed about what "farmers" actually do. He's a good guy and is always fun to joke around with. So all in all, it was a super day for just Maddie and mommy!