Wednesday, June 10, 2009

Maddie and the rest of us are officially on the mend. She is doing so much better, off of the oxygen since Sunday (she kept ripping it off of her face and her cheeks were paying the price for it!) and she's been maintaining her sats in the mid-70's. The cough is really the only part hanging on still. She's eating much better...but according to the dietitian at Children's, she isn't getting enough and her weight has just plateaued at 9 kilos (right at 20 lbs.) for the last few months. Their recommendation is to stop her formula and start giving her 2-3 Pediasure bottles a day since it's 30 cals/oz. Maddie's only been taking about 15-18 oz. of formula a day plus whatever additional milk or juice she gets in her sippy cup and meals and snacks. I've been trying different Pediasure flavors, diluting it with whole milk, etc. and she's just not liking it. Any ideas on how to get her to take this are surely welcomed as well as any ideas for boosting those calories!!! I wasn't really worried about it until our over-nighter last week at the hospital...those dietician's always get me in a twit! Thanks :)



Enjoying her favorite...homemade mac-n-cheese smothered with butter and cheese!

6 comments:

Faith M. said...

You can give her straight 1/2 and 1/2 instead of milk and like you said, just smother everything with butter. Maggie eats lots of cheese and dairy products. Ice cream! You know, most people think that our heart kiddos have to eat healthy, but really we WANT them to gain weight. The faster they gain, the faster they get their fontann! Mag's surgeon said most heart kiddos didn't reach 26 pounds until they are 3 or 4 yrs old and Maggie weighed 27 pounds at 2yrs. We are way more persistent and intentional with getting Maggie to eat. Add fat to anything she eats. Maggie likes yogurt but I try to buy some that has fat in it but that's hard to find. Be persistent and creative. She'll get there.

Jocelyn said...

Hi Katie...Our daughter, Evie, drinks Pediasure because she's a little on the small side and she really likes the banana cream flavor. Also, we call it her shake and she really seems to like that:) Oh and at first when she didn't like it so much, we let her drink it with a straw that had a whale on the end. She would just keep drinking it so that she could see the whale appear. Now she really likes it and doesn't need the straw anymore.

We went through this with dieticians when our Joshua was little (he had a kidney transplant and before that had trouble gaining weight). I remember going for all of the high fat foods and adding spreads to everything. His dietician also had us sprinkle a powder called polycose powder(I think that was what it was called) on everything to add additional calories. Maybe you could ask the dietician about something like that! I know it is frustrating! I remember the days of really pushing foods and even recording everything Josh ate for the dietician! Good luck!
Jocelyn (I'm married to Justin...Bryan's cousin in Arizona)
PS I always think Maddie looks great!! You are doing such a great job! She is such a sweetie and your boys are adorable, too!

Mommato4miracles said...

Hello there! I have a daughter who is diagnosed as failure to thrive so we do the pediasure as well. What our doctor had us doing was to add 1.5scoops of formula powder to each two ounces of formula, which makes the formula 30cal/ounce. Then as soon as she turned one we started adding the pediasure to her formula, she will only drink the vanilla. I started with an ounce and have just kept on increasing it. She is still not on the growth chart at 15months, but she is 18lbs now. The other thing you could try is GREEK YOGURT, we started giving her that a few weeks ago, it has a ton of protein in it and helps them to gain, she has gained 14oz in the three weeks she has been on it:-) Good luck! And God bless!!!

KELLY said...

Great updates, Katie! Maddie LOOKS fantastic and the boys are so ADORABLE and grown up. Good luck in the weight gaining department. We have weight "issues" with Jensen here. At 2 1/2, he's just about 25lbs. We try EVERYTHING under the sun. He will take the vanilla pediasure (Wal Mart brand), but that's it. My cousin, who's a nurse, also suggested Ovaltine, but I've yet to try that!

Hang in there, funny how at age one we'll be praying for weight gain, but NEVER at age 31!!!

Mimi said...

WHERE HAVE I BEEN!! I really need to do the "following" thing so I don't miss out.

You were in the hospital??? I had no idea!! LAME! I am so glad she is better now. Hopefully you aren't back anytime soon, but call me if you come to my side again OK?

Oh... feeding....don't even get me started!! You know my struggles- I have zero advice cause my baby doesn't suck. I know you can order flavor packets...the cherry vanilla aren't have bad. I have some I could send you if you want to try them out.

She is as cute as ever- and I want some of your delicious mac n'cheese!!

michele said...

Smoothies... oh and Katie I have some really healthy Herbal Life kids shake mixes... I could sure pass a couple on. They are full of vitamins and they can be blended with yogurt and milk or icecream and milk... they are pretty tasty.
That sweet girl and her mac-n-cheese!