Giving daddy kisses while waiting for Dr. VernonLast Wednesday, Maddie had a cardiology check-up in Bellevue. She had an echo done as well as a thorough exam and visit. Her sats were surprisingly high, 77% (she's been running in the low 70's at home) and she weighed 24 lbs. and 33 inches in height. It's impossible for the echo-tech to find her Glenn site (same story each visit, wiggly toddler and lots of scar tissue doesn't make it easy) but with the pulmonary blood flow they can see, it looks like the re-plumbing job is still working. Our burning question was when will she need her 3rd surgery...well, Dr. Vernon believes that Maddie will likely be 3 or 4 before her Fontan. That's really nice to hear but at the same time, I wish we could just get it over with. She needs to be around 15 kilos for it (30 lbs.) so we probably do have a ways to go since she hasn't gained any weight for almost 2 months and is just getting busier by the day.
I'm always nervous before her appointments and find myself mentally preparing in case we recieve bad news. Maddie was sick pretty much all of November so I was apprehensive that she'd have such a good report, especially since she's turning more smurf-like each day and the sat monitor at home enjoys 72-74%. Even with the increased blueness, her Card. believes she's doing well. And the best part of the visit was hearing we don't need to come back for 6 months!
She also recieved her first round of the Synagis vaccine today with Jana at our local clinic...2 pokes & 4 doses were given = a $5400.00 immunization! That's just crazy. She'll continue to have these throughout the winter and we're jumping for joy that this is the last season she'll be getting these costly shots!!!
6 comments:
My heart baby has a cardiology appointment on Thursday. I have been feeling anxious about it for days...and I know it is going to keep building up until we are done.
We are hoping to wait until he is at least 2-3 to have his fontan, but his O2 sats seem to be dropping fast and his little blue feet make me so nervous. It makes me feel better that your daughter is 72-74% is 6 months out for another appointment.
Isn't the price of those Synagis shots unbelievable!
I am praying for your little girl.
Katie, I'm glad to hear that her check-up went well. That picture is adorable.
AWESOME report. Love the picture of Daddy getting kisses, how sweet she is.
Hi Katie. I love your updates. I am glad her check up went well. I can understand a part of you just wanting to get that surgery over with... your sweet girl is adorable Katie!
Thank you for the book suggestion on my blog! I want to check it out.
I am so glad that Maddie is doing so well. She looks great in her picture. I feel your pain about being nervous about appointments, Sophia has one next week and I am getting anxious already :0)
So glad to read that Maddie had a good cardiology appointment. Cain has his next cardiology appointment a week from today. I am like you an very anxious to find out more regarding time frame for Cain's next surgery. I am SOOOO not ready for that surgery but hate having the feeling of it lingering over us. We had always been told her would have it when he was 18-24 months of age but when I read other heart moms blogs everyone mentions the 30lbs. I mentioned that to our surgeon more than once in our meetings with him and he always says that Cain wouldn't have to be 30lbs. He mentioned that he likes to do them earlier which is something that makes me very nervous. I know I will have a million questions next week. I know you are thrilled that you want have to go back for another 6 months. That's great news!! Okay..now that I've written you a novel! :) Heart Hugs,Catherine
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