This week is going to be a crazy one and to kick it off, we drove over the pass this morning for Maddie's Cardiology and Nephrology appointments at Children's. It was a looooong day but well worth it. Getting good news never gets old. Her check-up proved what we've been seeing from her, great results and a growing girl!
Maddie has officially 'graduated' from Nephrology...no need to see her as her kidneys have grown well and are finally similar in size! She doesn't appear to have the reflux as she has shown no symptoms and from her renal ultrasound, they don't see any signs/damage from this. She weighed 42 lbs. and is 42 inches tall (80th percentile).
As for her heart, she's finally hit the 90's with her O2 sats, working her way up from 84-88% since surgery. She actually satted 92% in the clinic today! Whoo-hoo! Her echo showed really nice heart function but also two collaterals...crazy enough, these collateral vessels Dr. Chun believes are helping her out this time around. One is off of her aorta (we knew this one was there from her cath last February) and the other lies on the backside of her heart. They don't seem to be bothering her too much, so we won't be intervening until they cause problems. To see them on echo does mean they are getting some substantial blood flow though, in the past, her collaterals weren't large enough to see on echo. Her pulmonary arteries (always have been on the small side) looked fantastic! They've grown!!! As far as her fenestration, (the small hole that is in the conduit) it's still open and she's still depending on it. I was crossing my fingers that it had closed on its own (higher sats) and she wasn't needing it anymore but Maddie just needs that extra "pop-off" to help relieve pressures in her heart. I'm glad shes's getting a bit of a break with having the fenestrated Fontan but we also talked that it would be nice to close it someday. Having it open poses a higher risk for stroke from a blood clot. She would also gain a few more points in her sats with it closed.
And guess who's Fontanniversary is this Thursday? It will be ONE YEAR on the 24th since our sweetheart's last, and hopefully final heart surgery. Wow. I feel beyond blessed and watching this girl thrive is a daily reminder of God's goodness and grace.
4 comments:
Woohoo! Great news! Glad to hear Maddie had such a great check up and HAPPY FONTANIVERSARY!! :) :) Post Fontan is such a great place to be, isn't it? <3
Found your blog through other heart moms. So many similarities with our two girls- both blue eyed, blonde hypo plastic right hearts! My daughter Sofia just had her Fontan and is doing well. Love reading your blog!
What good news! Wow, 90's! Something to make a Mamma's heart sing! So happy for you and can't wait to talk again...sometime.
Oh what great news!!! Makes me smile and get teary eyed! I am so glad that appt provided good news. I am praying for Maddie tonight. And thanking God for you Katie.
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