Well, Maddie did it! Those dainty little fingers have jerked the tube out of her nose, twice now. Do you blame her? Not like she knows what she's doing, but she is really good at it and each time I've been holding her! You'd think I could have stopped it, but she's a quick little bugger! So...I'm proud to say that I have officially installed her NG tube now! Bryan had "passed" the test before coming home from Children's and he'd put it in a couple of times over there then once here. Last night, I stepped up to the challenge and it was a big success. Hardly any tears (for either Maddie or I this time)...lets just say that mom has the touch. I took a quick photo opportunity without that pretty tube...wanted to share her entire face without it!
She also had her first check-up with Dr. Allred (Uncle Lowell) on Monday and gained 5 oz. in 7 days! She's 6 lbs. 4 oz. now! We think that's pretty good for a little marathon running heart! We had trouble getting her O2 SAT's there so we took a trip to the Ephrata Hospital to get a better reading. To our surprise, they were very low there as well but my baby was not showing the signs that go with these kinds of numbers. I knew that the monitor had to be wrong...plus it wasn't really equipped for babies. After talking to her cardiologist, we figured we better get a good SAT reading for reassurance, so Bryan and I drove to Wenatchee's ER to get another reading and tracing for accuracy. Her SAT's were fine...78-81 (this is within normal for Maddie (75-90)). I now I have a SAT monitor being delivered to my home on Friday morning. This will be nice to have, since we need to watch hers closely. Her next surgery, the Bi-directional Glenn, will be scheduled based on where her SATS are plus her weight, health, etc. So, in 4 3/4 years of parenting, I made my first run to the ER! I have a feeling it won't be the last with our little darlin! We're doing really well though...enjoying being home and trying to just "catch up" on rest. Funny how you feel after a month of little sleep! Maddie is a very good baby though and improving everyday with her feeds. Yeah!
7 comments:
Does Maddie like older men? Jensen, who is 17 months is TOTALLY in LOVE with her. He dosn't say much (a boy thing, I'm hoping), but sat on my lap for about 20 minutes laughing at her, giving the computer kisses, playing peek-a-boo with her, and telling her "hi." It was so cute. I took a picture and will try to email it to you later. Every time I'd scroll down or move away from her pictures he would cry.
Anyways, the pictures are such a treat. She is so beautiful...with or without the tube. We continue to lift your entire family up in prayer and pray that things continue to go well for you all.
Kelly Rotter
Katie, Bryan & Family
We are thrilled. . . your successes and healthy reports come as so many anwsered prayers. We're proud of you!!! Maddie is an inspiration to all of us. We love you always. Happy Spring!
Clint, Kelsey & Wade Endicott
Love the pictures of her brothers kissing her--too sweet!! I wish like many others that we could spell you off, especially at nights. So many of your friends would joyfully, jump at the chance to give up a nights sleep so you could get one. We love your family so much, keep going!!
Happy Birthday Katie, hard to believe you are 30 and so much has taken place in your life.....truly, I read each day about Maddie and how this little girl has changed so many lives, more than we can know......I cry every time I read your blogs, good news or not, the pics the music and just the "faith" you have in the Lord thru all this is truly because of an Awesome GOD...
Love and prayers, Phyllis J.
THe boys kissing their beautiful sister is absolutely precious!!! My goodness, she is a beauty!! I'm so glad things are going so well for you guys!!I miss seeing you, but i feel so updated reading the daily blog!! Love, Sheila
Katie, she is so beautiful!
Welcome home! Isn't it so good to be home? It's a tremendous let down after running on adrenaline for so long.
You have an absolutely gorgeous family! Little Maddie looks like she's growing and gaining weight. So is Natalie. She's getting a double chin! ;)
God bless you with the challenges ahead.
Angie Hand
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