update on appointments with rash girl

Maddie is feeling so much better! At the moment, she's sitting on my lap eating a big spoonful of peanut butter. I hesitated to report on her status since it's been changing so frequently these days. The latest fever, which took us to the ER over the weekend, was the onset of Roseola. This Roseola rash (it's #4 and different from the previous 3 rashes) began Wed. afternoon on her tummy and back. That explains the 4 days of high, unexplainable fevers! I've been singing "rash girl, na-na-na-na-na-na-na-na" (the Batman tune), she loves her new theme song :)

As for her appointments this week at Children's...
Nephrology went fine. She was ultra crabby and did not enjoy her renal ultrasound one bit. Her kidney's have grown, measuring 5.6 and 6.5, they are functioning and now she just needs to have a repeat VCUG at 2 yrs. old to determine if she's grown out of the vesicoureteral reflux since you can't tell this with ultrasound. Her
Bacterim has been changed to 2 mls of Furadantin which is a little spendy!

She was also squeezed into Dermatology while we were there and Dr. Sidbury was able to check out the weird rashes she's had. I had pictures of the past ones. His census is that it's viral related, and when she's come down with these bugs (Metapneumovirus, Stomach flu and the onset of Roseola) she's broke out in a rash. She is a skin sensitive kid and it may be her "warning" to us that she's getting sick, I guess that's nice to know. He does think it's something she'll grow out of. We ended up cancelling ophtamology since she was so tired and we wanted to save her for her card. appt.

As for Cardiology, she was a superstar! I was amazed at how big she was during her echo, such a good girl as long as she had books, bubbles and a Baby Einstein movie to distract her! Her echo looked great, although she does have some veno-venous collaterals and a trivial amount of aortic valve regurgitation but it's nothing to stress about. The systemic, working side of her heart (her left) is doing it's job and that's awesome. Her O2 sats were 77% and EKG was normal for her. Dr. Vernon was impressed with how big she is, 21 lbs. 15 oz. and 31 inches in length, measuring in the 25th percentile! She is happy with Maddie's status, gave her an A+ and also a 6 month pass!!! We won't be back for another heart appointment until next year! Wow, what a blessing and huge relief. Our baby girl has come a long way.

Nany is the hero at the doctor's appointments (both of ours!) She's so much help to me, and Maddie just adores her since she always "saves" her after a procedure or test. I'm always the bad guy, holding her down. That's my job, right? I'm glad "NANEEEE", as Maddie likes to yell, is the hero. She deserves it. We also got in a short chat with Mimi and Mia! She is such an amazing little thing, super cute and smiley just like her sweet momma. We always love seeing them and lucked out having our cardiology appointments the same day. Maddie's not-so-favorite part, the EKG. It is not painful, just annoying.
Here's the big girl during her 40 minute echo