Tuesday, May 11, 2010

cath result news

Maddie's cath went really well and it's always refreshing to hear that the docs were PLEASED with how it went. Not only did she have Dr. Johnston's expertise, Dr. Chun, Dr. Jones (who came by later) and Dr. McMullan were all in on the effort. She was out and into recovery by 5:30 and we were finally able to see her an hour later. Dr. Johnston was able to insert and dilate a balloon thru the cath at the narrowed sites on both her right and left pulmonary arteries. The bottle necked areas with the stenosis (result from scar tissue) were 1/3 of the size compared to the rest of her pulmonary artery (4 mm at the narrowing and 12 mm throughout the rest of the PA). He didn't see the need to place stents since the ballooning seemed sufficient for now and she responded to it. She's currently satting 78% which is high for our girl. Sure beats the low 70's she's been favoring lately :) The area that is narrowed is on both sides of her SVC where the pulmonaries go out to the left and right lung so placing stents in there would only complicate her next surgery. The left PA was worse because her aorta lies right at that spot so we'll see how long it stays widened. As far as the collaterals go, she didn't have any large/damaging enough to coil off. Dr. Johnston's thought was her increased cynosis is a result of the narrowed PA's and a pressure build up into the SVC...not so much from the collateral vessels. The four coils that Dr. Jones put in at last year's cath seem to have stopped any further growth of those vessels. He also measured pressures while in there and was happy with those numbers. We're on the 4th floor now and she's being monitored. If she keeps this smooth recovery up, we should be on our way home tomorrow.

Our little trooper devoured the apple juice, chocolate pudding and bites of my dinner and handled it fine. Yay for no pukes. She was hoarse from the breathing tube, a bit cranky and irritable this evening...totally understandable. Her puncture site at her neck bled quite a bit but other than that, she's been pretty good. She is now sleeping and content in her hospital crib...but will be interrupted soon for a chest x-ray and labs. It's true that you never get any rest in a hospital.

Thanks for your love and prayers today! Here's a couple of pics from our day...

Miss Mooms before being called back to the surgery center...she was trying to find something to eat in her backpack. She was s-t-a-r-v-i-n-g and kept reminding us she wanted to EAT. She hadn't had anything to drink since 8 am and nothing to eat since dinner the night before. Poor thing...so much for her maintaining 12.2 kilos (that's 27 lbs) Smiley girl after Versed and before surgery. This is McDreamy, oh, I mean her daddy and my McDreamy...hey, the real McDreamy (Patrick Dempsey aka Dr. Shephard) was here at Children's yesterday!
Recovering in our room on Giraffe 4th Floor

23 comments:

Susie said...

Yay! Great news! So glad to hear that things went well. Thats awesome that her sats are already higher- she'll have so much more energy! Hopefully you can get a little rest tonight and be on your way in the morning! Way to go Maddie! love you guys!

-Sus

Jenny said...

That's wonderful news! She looks great! :) Glad things went so well.

Stefenie said...

Great news!!! Saying many prayers that her PAs stay open for quite some time.

The Hitchcock Family said...

So happy that everything went well! Hopefully you guys will be heading home later today. She can try out some of that extra energy on her brothers!!

Wodzisz Family said...

She looks great! I am so happy to hear she is doing so well. We have a cath and possible ballooning/stent on Thursday and I was so happy to read that Maddie did so well. Caths scare me for some reason and it is always good to hear little ones doing so well after.

The Smith's said...

What a great report! I am so glad the docs felt good about everything and so glad you guys are hopefully on your way home today! It was so good to see you yesterday.

The Simmons Family said...

Great news!! I'm glad that allw ent smoothly and her pressures are good. It sounds like she'll have some time at home to keep growing before the Fontan.

Maddie... you are amazing!!!

Jen, Paul and Gracie said...

So glad everything went so well! Maddie, you are a superstar :)

The Hands said...

Katie, I'm so glad all went smoothly. Miss Maddie just gets cuter and cuter every time I see pictures. She even looks adorable snuggled all nicely in her big girl hospital crib. You made it through another one, hurray for you too! ;-)
Angie

The Hands said...

Katie, I'm so glad all went smoothly. Miss Maddie just gets cuter and cuter every time I see pictures. She even looks adorable snuggled all nicely in her big girl hospital crib. You made it through another one, hurray for you too! ;-)
Angie

Bethany said...

Hey Katie!
I'm so glad the cath went well and Maddie is satting better! And its great that she has some more time before she has to undergo the Fontan! She is absolutely adorable! I cringe every time I think about being in the hospital--very true about not getting any rest! :) She looks much pinker to me in the last picture, and I know that has to be comforting to you!
Hugs,
Bethany

Suth-ern Mama said...

Katie, glad all went well! Love the pictures you took. Just found out that Maia will have her next cath procedure in the fall sometime. This one is to close the VSD. Hopefully it will be just as positive as little Miss Maddie's procedure went. God Bless and you are all in our prayers.

allison said...

Oh what good news! Glad to see that she handled it like a champ!!!

Brooke said...

I'm so glad it went well!

Elaine said...

A wonderful bit of news. We are glad that it went well. What a happy day it became! No doubt, God is watching over you and your family. Congrats!
PS - Maddie really is a SWEET HEART!

Jason Stewart Family said...

Great Job, Miss Maddie!

The Clinkscales Family said...

So happy to hear everything went well. She already looks pink in the recovery picture. It makes me smile. Praying for a speedy recovery. Take care, Catherine

Unknown said...

We are so glad that you are home and recovering so well. I love you so much. Kylie asked about Maddie tonight. We are going to have to get the girls together soon, they are missing each other. I am so very happy that all went well. I heard from a little bird that she is feeling really great, maybe a little more spunk. I can't wait!

Anonymous said...

So glad everything went so well! She looks so sweet as she lies there in the Girafe Room. Have asafe trip back and lots of pudding and ice cream for Maddie!
Thinking of you all,
Sheila and family

Ray said...

saw miss maddie in the cath lab yesterday, but she was already draped. dr. chun and i were watching her wonderful sats.. :) sorry i missed seeing you guys. tried to look for you guys, but must've missed you...and i was in richland today. guess i will have to try again next time.
glad to know she did well.

Stacy said...

Bless the amazing gifts God has given those doctors! Simply awesome. We are so happy to hear that all went well and Miss Maddie is recovering well. Have had her and you all in our thoughts and prayers so much. Hope you are on your way home VERY soon! God bless.

KELLY said...

Maddie...you ROCK!!!

The Mason Family said...

Glad to hear that everything went so well! Did they mention anything about the Fontan? Or still holding off until that 30 pound mark?

I think about you guys often...xoxoxoxoxo!