Appointment Update

Maddie's cardiology appointment was awesome yesterday! Her echo looked good (she was "too busy" to lay still but Ray has some skills getting those pictures she needs!) and her sats were 81, which means they're coming up! As Dr. Chun put it, the Glenn is doing what it's supposed to!!! He was very pleased with how pink Maddie looked as well as how big she's getting, up to 13 lbs. 9 oz. and 25 inches in length. What was new "news" for me yesterday was she no longer has a murmur...I never realized this but after the Glenn and Fontan repairs, she shouldn't have a murmur. Her murmur after birth and after her B-T shunt was so loud from all of the turbulence of blood flow, it was hard telling what was going on in that little heart of hers! Maddie's Lasix med was dropped altogether, so one last med to give! So now she's down to Captopril 3x a day, Bactrim 1x a day, Prevacid 1x a day and Asprin 1x a day. Not too bad! We'll go back in a month for a follow-up.

After her cardiology appt. in Bellevue, my mom, Maddie, and I rushed over to the main campus in Seattle for her VCUG, an x-ray of her bladder and urethra. (Bryan was unable to go since he's getting ready for apple harvest to start.) This test was ordered to rule out whether Maddie has reflux of her kidneys or not since in all of her renal ultrasounds, bright spots have been detected in one of her kidneys. It wasn't a very pleasant test so we were using lots of "tactics" to get her to be calm. While she was lying on the x-ray table, I was standing over her and made a motor noise then my mom did as well. Maddie quit fussing, studied our faces then started making the "bbbbbbbrrrr" noise herself! It was the cutest thing...and she hasn't stopped since! She loves her new trick. So the test concluded that she does have reflux, "mild-moderate". They rate it from 1-5, 5 being severe and Maddie's is a 3. Only her right kidney showed the reflux, immediately after the dye filled her bladder. She's on the Bactrim for this (a prophylactic antibiotic) to help prevent any UTI or kidney infections...so far it's worked, she hasn't had any yet. I'm waiting to hear what the official report says but I'm sure she'll stay on that antibiotic until a further study shows whether it has "fixed" itself. Most of the time it goes away on its own and settles itself I've been told. We're hoping this is the case for Maddie.

The delivery to the ICU went great! It was so fun to drop off the basket of blankets. Maree came out to get them and was very appreciative...they'll be used to make the babies' beds then the mama's can have the blankets after. I'm so excited about it and know it will bring a little happiness to some hard times for families. While there, I got to see Dr. Baden as well. It's always fun to chat with him. Of course they're super excited about Maddie and her great recovery...our cute little rockstar!

Maddie with Ray (our favorite sonographer)after her Glenn in July.

She's off sternal percautions so it's time for the Bumbo chair & tummy time!

Hanging out with me in the kitchen this morning and having lots of fun in her pink, princess walker! Her feet just dangle but she does play with the little toys at least. Boy do her brothers love to "gently" push her around!