Tuesday, July 15, 2008

Cath=Glenn surgery time

Maddie's cath went REALLY WELL this morning. I did a lot of worrying and borrowing trouble for nothing! We gave her to the surgical nurses at 7:45 and were paged at 9:00, so it didn't last long. Dr. Jones came in to talk to us shortly after and was smiling as he came through our door (always a good sign.) His first words were "Well, she did just fine," what a relief. From her cath, it was concluded that she needs surgery, the Glenn, which is the next phase in the 3-stage surgeries. Her pulmonary artery looks small in one part, the middle where it's attached to the shunt but the ends that go out to the body look normal. That was such good news to hear. Her shunt also looked very good so no ballooning was needed there either. Basically it was just an "investigative" cath, taking pictures in order to make preparations for her Glenn surgery. Now we're waiting to hear when she'll be scheduled. We're told it could be this week or in a couple weeks...she's not urgent, and Dr. Jones did say waiting a month or more isn't going to present any new changes or help. She's not going to gain that much more weight in that amount of time, so she's ready for the Glenn anytime. His last words to us were the best..."this is what I'd hoped for in Madison's case." What a beautiful phrase to hear, brought us much HOPE. God is good. Again, He's shown us His love, mercy and grace with our little Maddie. Here's the pictures we were given of Maddie's cath this morning:

This is the pulmonary artery (long tube running horizontal) and the narrowing is just in the middle where it connects with her shunt (skinny tube running vertical.) The sides of the pulmonary artery are larger (kind of looks like an ant) which are good and of normal range. The skinny loopy things are the catheter wires strung up through her heart.

A quick sketch of the Bi-Directional Glenn that Maddie will have next, hooking the superior vena cava to the pulmonary artery.

Maddie's right ventricle. It's very small in comparison to the left. In a normal heart, these are relatively the same size or are in proportion to each other.

Her left ventricle- enlarged since it has to compensate for her right side not functioning.


Since starting this post, Maddie arrived. She looks great and is ready to eat since she was cut off of feeds since midnight. Her little voice is hoarse from being intubated and she's coughing some but other than that, she looks beautiful! Back to her cute self I'd say!!!

15 comments:

The Hands said...

I'm so excited that things are progressing smoothly for you. Sounds like you got quite the education from Dr. Jones. Nice to have the pictures from the cath. We will keep praying for peace in your hearts that come from knowing that God is in control and His children will never be forsaken.
Angie

Miller Family said...

Oh Katie, tears of joy flow. Such great news and many answered prayers. You rock Maddie! Stay strong sweet girl. Hoping you all get some rest and continue to feel the Lord's presence. God is so Good! Love, Michelle, Dan, Ty and Colin

Worsham Family said...

Way to go Maddie! Once again, such a trooper. I have been thinking about Maddie and the rest of your family all day and I am happy to hear things went well! Feel the love we are all sending your way.
Shelli

Anonymous said...

Such good news Katie. We are thinking of you and keeping your family and Dr. Jones :) in our prayers.
EMILY & JENS

Anonymous said...

TOTALLY AMAZING!!! Maddie is just this! Soooooo good to hear today went well. We love you guys so much and send hugs and kisses to all of you. Andy, Danyel & kids

Anonymous said...

Once again Maddie has shown her colors. . . your little girl can sore above all others. I am sure your worries and fears are still there, but take a deep breathe and hug that little beauty of yours. She's amazing. Congrats on the good news and wishes for a speedy recovery for Maddie. We'll be waiting to hear a surgery date. Our prayers and love,
Clint, Kelsey and Wade

Anonymous said...

My heart sank as I logged on today I'm glad to here maddie came out doing good. She is a fighter and we just hope and pray that things will continue to go smooth. We'll it looks like well be able to see you tomarrow or sometime soon. I pray that you continue to feel comfort and strength from all of the prayers. The Fuhriman Family

Anonymous said...

She is such a fighter and I think she just likes to keep us on our toes. I am so glad to see it all went well. Take Care Randee

Anonymous said...

Katie~ So glad to hear the good news and that there were no surprises that arose from the cath. Technology is so amazing to be able to share photos of Maddie's heart with us all. We will continue to pray for you all and that Maddie is as comfortable as she can be there. Hope you can feel all our love and prayers! Love, Krista

Rubert Family said...

Katie & Bryan-Wow, what great news that all went well...Maddie is a strong little one and we will keep the prayers coming. Love, Les

Anonymous said...

Katie and Family,
Thanks goodness-what wonderful news! Dr. Jones' words MUST have been the best words ever to hear! Lots of love and prayers your way!
Love, Sheila and family

Janet said...

Katie and Bryan,
I so relieved and happy that things have gone well today. You are in our thoughts and prayers. We love you.
Aunt Janet

Anonymous said...

What sweet and wonderful words. Just what we have been praying for. Keep hanging in there! We love you all so much!

Anonymous said...

Katie and Bryan,

Our prayers have been answered once again........Our Father's grace,love and mercy are so evident. I wish you both a good night's rest and give sweet Maddie a kiss goodnight for me......Love, Nany

KELLY said...

Katie and Bryan,

Tears of joy over more proof that God is Good and Madi is a true warrior of His.

Lots of love,

Kelly & Family