Monday, March 24, 2008
Day 11
Maddie's night and morning went very well. She was being weaned off of the ventilator as well as her morphine. The plan was to get her extubated this morning...until they did an echocardiogram. The echo showed more fluid around her heart, more from the last echo on Saturday. So I waited all day to find out what/how they were going to take care of it. By 6:00 pm, she was wheeled off (again) for another procedure to the cath lab...putting in a new chest tube to drain the fluid off of her heart. Dr. Johnston performed this. Always hard to watch the doctors take her away, and Bryan went home really early this morning to take care of some stuff, so I was by myself. I'm learning to just remove my own feelings from these tough situations and look at it from a medical standpoint. She has to have it done or things will get worse. While waiting, I went to the cafeteria for dinner and to my surprise, as I sat eating my meal in tears, Dr. Vernon sat down with me! It was nice to have some company and the reassurance that Maddie was ok and would pull through. Of course you worry non-stop of the "what ifs". The procedure went well besides a little heart tachycardia, and the plan is to take her off the ventilator in the morning. Yeah, extubation day (as long as nothing changes this)! Hope she has a good night. I haven't got to hold her since last Wednesday, so I'm itching to have some time with her. Once the breathing tube is out, sounds like I'll get my chance. She looked very beautiful today (as always), swelling is almost gone, and I even put a little pink bow in her hair. So fun to finally have a little girl.
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9 comments:
Good girl, Katie, your doing what has to be done. I had people tell me when Jax was in Chemo that they just couldn't do it if it were them. What would they do, let their child die? Of course your strong enough, and of course it's the worst thing ever, but your doing what she needs and your loving her more than words can say. Your a great Mommy and I hope you get to hold her soon. for both your sakes. Keep putting pink bows in and do they need to see all the fingernails and toenails or can you paint some of those too?!!!
Here, here Becky! Abby's toes were painted almost immediately! I finally had my girl and I wanted the world to know it!!! I think you're doing a wonderful job of letting the doctors do their job. I know it must be hard. I have to say, my mom and sisters are great examples of this. Mom with ALL Holly's heart surgeries, Becky with Jax and Holly with her little Sydney's brain surgery. They all had to stand back and let the doctors heal their babies. We can do hard things and they will make us stronger. Keep up the good work! We're thinking of you!
Hi Katie,
This is Brandi, Brent's wife. We've been reading through your blog today and just can't believe all that little Madison has been through in the past 11 days. She's adorable, and so strong!! You're such a great mother and seem like you're doing really well, considering... Brent got your number from his mom. We don't live far from Children's and we would love to see you guys. Hopefully we can visit you sometime this week if you'd like. Brent will give you a call.
Katie, You are truly an amazingly strong woman. That being said, you know that Maddie will always be strong as well. Good Genes!!! Hang in there Katie. We are thinking of you and praying you get great news this morning. The other night during bedtime prayers Colin was praying, "Dear God, please help Miss Katie's baby (whispers to me 'mom, what's her name again?)" As I was about to say Maddie, Ty chimed in with Maddie and Colin says, "Oh yeah yeah, Maddie. Help her heart please. Amen" So sweet and simple. Keep leaning on God...He is ALWAYS with you! If there is anything we can do for you here back home, please let us know. I know once you get to hold Maddie again, you will feel rejuvenated with her love. Here's to another good day! Michelle Dan Ty and Colin
I hope you get to hold Maddie today, it will be very comforting for you and her. You are doing what has to be done and there is no other way. We all continue to keep your family in our thoughts and prayers. Maddie is certainly alittle fighter. Hang in there.
Gari Lynn
I know Maddie is anxious for you to hold her as well! Your time will come! She knows you're right there and hearing your voice is very soothing to her I'm sure! i can't wait to see her with her bows in her hair-what an angel!!! love, Sheila
Someone told me that the pains of motherhood are often unbearable, but the joys are more wonderful than anything in this world. This especially applies to you. Stay strong. We are hoping for wonderful things to happen soon.
Katie,
You are not only strong, but wise and loving as well. Simply having you with her, Maddie knows she safe and loved. Praying all went well today and that you got to hold your little pink-bow wearing angel.
Love, Kelly & Family
katie how sweet i love that you got to put a bow in her hair i know exactly how great that is after two boys. many more fun outfits and bows to come your way as she keeps passing all her tests all this takes time and you are amazing with your patience and knowing what little maddie needs to get better may you have a great night as well our MANY prayers jacquie and scott
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