Maddie's graduated to the floor! What a little superstar, her surgery was only 2 days ago, she simply amazes us. Still in some pain, now just down to Tylenol around the clock. An NG tube was placed (by me) today and now we're giving her full feeds- first by bottle then whatever she can't finish we gavage through the tube. She had an EKG today and an x-ray and echo is scheduled for tomorrow. There is talk that we'll be discharged on Saturday as long as her feeding goes well and she can tolerate the volume. She's on Captopril (heart med) and Zantac (to help with GI, reflux) for the time being...that will all be adjusted before we leave as well. Our wait for an open room on the floor paid off (the orders were written yesterday to move there), and we were lucky enough to get a single room, the exact same one we were in last week!! Love it. It was a little sad to leave our doctors and nurses in the ICU but we'll be back for one more round, the Fontan, in a few years. So we're doing great and enjoying more time holding and caring for our sweetheart. It's tough seeing her in pain, but we know it could be so much worse and we count our lucky stars. They say the headache lasts for about a week then they're good to go. Just takes some time to adjust to the new flow and pressures.
We have some friends who are here with their baby at Children's as well. They have been faced with an excruciating decision that no parent ever wants to have to make. Please pray for comfort for this dear family and their darling little baby boy. Our hearts surely go out to them.
6 comments:
Three cheers for Maddie Allred- what a super star!!
She's a SUPERSTAR!!! What great news all the way around for Maddie. Continued prayers for relief from her head pain and speedy recovery. Lots of prayers for your friends as well.
What a little trooper. She's movin' on up and then movin' on out to be home so very quickly. What an answer to all our prayers. We will keep your friends in our prayers as well. Congrats on such great news and great job Katie putting in the NG tube. You and Bryan are the best parents for Maddie. She is a lucky girl. Love, the miller's
Oh Katie, the blessing and curse of Childrens Hospital. There is always, always some child worse off then your own. I know it used to be so confusing, in some ways it helps you see your own blessings so clearly, but it is never easy to see anothers struggles is it? We are glad you are comfortable in your own room and that Maddie continues to heal so well. Tomorrow we are off to the Relay for Life, and I'm thanking my Heavenly Father, once again, that my child gets to wear the "survivor" shirt. You have your own little survivor too---she has already run quite the relay for her life hasn't she!
Hallelujah! So happy to hear of Maddie's amazing progress! I'll continue to keep you all and your friends in my prayers.
Love, Melissa
Katie-What wonderful news about Maddie! Man, she's a tenacious little thing-I bet she gets that from her mommmy!!! Wonderful quality!!! Lots of prayers for you guys and to your dear friends! I'm hoping they know and realize how powerful the prayers are when they come from Royal City friends and family! Love, Sheila
Post a Comment